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Let's introduce you to Donovan; an amazing 14 year old boy who is battling Lafora disease. Lafora disease, also known as "Lafora Progressive Myoclonic Epilepsy" (MELF) is a fatal recessive genetic disorder. In layman's terms... Lafora disease is a severe, and extremely rare form of epilepsy.
Unfortunately, Donovan's family is all too familiar with Lafora disease. Donovan's older sister, Mallorie, passed away on March 20, 2013 of the same illness. There are only 20 cases of Lafora disease known throughout the world, and only 2 pairs of siblings with it; Donovan and his sister Mallorie were one of them. Doctors estimate that Donovan suffers some kind of seizure every 10 seconds...can you help?
Our goal is to raise funds for Donovan to support his current medical care and extensive bills. At one point, Donovan needed to be transported via med-flight to Children's Hospital in Boston and that bill is an astounding $15,000! This is just one of the many bills that Donovan's family is being forced to deal with in their daily lives...
In addition, we will also be supporting Donovan a.k.a. "The Purple Friar" by creating a 3 on 3 basketball tournament at Providence College to be held this Spring. Donovan loved playing basketball, and now loves watching his favorite team; the 2014 Big East Champion Providence College Friars!
He is a part of the Friar family! Every amount donated will go DIRECTLY to Donovan's care.
-Liz Aube-VanPatten
Please click below to begin the donation process.
